I haven't spoken much here about my fibromyalgia and the pain that goes with it - not where/how I want to spend my time & energy. But a constant Fact Of Life nonetheless, and I do belong to a Yahoo group for fiber artists with fibro, called, logically enough, Fibro Fiberartists. Here's the link: http://groups.yahoo.com/group/fibro_fiberartists/.
I was thinking about what I wanted from this group today, and here's what I posted to the forum:
"As others have said, while I really appreciate a community of
fellow "fibro-fiber artists", I personally don't really want to focus
so much on the pain & disability here either...There are other forums for that, and I have chosen to stay away from them most of the time, because too many people there seem only focused on their pain & disabilities. I refuse to define myself by my pain!
I do believe that in order to move ahead it is necessary to acknowledge the pain, the anger, & all that "stuff" that goes along with having fibro, and to mourn what we have lost, and I think that this is a legitimate place to share whatever comes out in our art
from that process, if that is of value to you. It isn't gonna all be pretty, that's for sure!
If there's anybody here who's familiar with
the SoulCollage process (http://www.soulcollage.com/), I made this card for Pain.
One of the gifts fibro has given me, in a roundabout sort of way, is the gift of time. Because it forced me to just plain STOP everything else for a while. Because it has taken me right off the formerly all- consuming treadmill of working-doing-going-being-it-all and plopped me right smack into my SELF. Because the pain and stress has led me into techniques of healing breathing, meditation, ways to calm myself inside so I can see what's really there. Because it has changed so many of the things about me that used to be so central in my life, so that what is truly the ME inside me can actually shine more clearly for me.
So those are some of the things I like to focus on, and my creative work seems to be all coming from that place of illumination. I might not have found or really appreciated some of these inner places if it hadn't been for this fibro."
So I'll ask anybody who is interested: what are some
of the better things that have come to you as a result of having
fibro? Be honest and tell the truth!
